MDA Against ALS
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
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Correspond with Nancy on   |
December 30th, 2009 at 6:50 pm
Merry Christmas Nancy
I was very sad to hear of the passing of your Mother Betty, I lost my little Brother Robert to ALS a few years ago so I am still freshly dealing with his passing. Especially at Christmas as Robert loved Christmas and his wife and two great boys, We can never replace what the Creator took from us and maybee in time we will understand just why. The one thing that Robert was sad and mad at was the lack of real help for this disease here in Canada, I will never forget my little Brothers great suffering from the deadly ALS.This disease strips away all dignity and eventually kills every muscle within the human body, I truly wonder Nancy who this disease affects more those who have it or the loved ones that are forced to stand by and watch them suffer in silence as we scream inside for answers. My Brother Robert and I are poster boys for ALS Ontario and I am proud to be Roberts big Brother, ALLWAYS FOREVER. Nancy please keep up the great awareness and funding campaighn, Betty and Robert are counting on us to make the difference.
Merry Christmas and love I send to you,
David Grey Eagle Sanford.
416-615-2754
Toronto Canada
December 23rd, 2009 at 4:29 pm
My daddy was diagnosed December 9, 2008 with ALS. This is the most horrible thing to watch happen. He was a healthy 57 year old and then on July 9 2009 he lost his battle. We are still in shock he and my mom were married 30 years and were the best of friends. The worst was the disease took his voice and I miss the sound of it. I treasure the emails he would type out for me. My heart hurts for you.
December 21st, 2009 at 3:12 pm
I remember every moment of the day I found out my Grandma, my best friend, was dignosed with ALS. I remember the grief I felt in hearing my Grandma tell me that the prognosis was only months (I was 16 at the time.) In that moment I said, “NO, Grandma we are going to fight this.” FIGHT she did. She didn’t succomb to the disease in months instead she fought a brave battle that lasted more than three years. I remember her lying in the hospital bed barely able to open her beautiful eyes until she looked at me and she smiled…My Grandma knew that as a family we were strong enough to let her go….I told her to fly.
December 20th, 2009 at 6:24 am
Hi Nancy,
I just watched your farewell show tonight, a day later at 2am while nursing my 7 week old. My mom is 56 and has ALS. I feel like my story is similar to yours. Newly married and a new mom and taking care of my newborn and my mom all at the same time. It’s a lot to handle. It’s such a terrible disease; I can’t think of anything worse, except thank God we get to spend time with them and tell them how much we love and appreciate them. Life is too busy and hard to work on the ALS fight now, but I promise I will in my mom’s memory in the future.
Laura