MDA Against ALS
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
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Correspond with Nancy on   |
October 2nd, 2009 at 11:44 pm
Hello Nancy,
I have wanted to write to you for sometime now as it is coming up on 3 years since my mom died of ALS this October. I still am having a hard time getting over watching her suffer everyday, and that I was the one who had to decide to pull the plug. She was only 66 years old. The scarey thing is that both her father and his mother died of the same thing. I am the youngest of 3 children and I think about what are the chances that me or my brothers will come down with ALS. I don’t know anyone else who has gone through this and I am sometimes alittle scared! I look forward to talking to you and maybe I wont feel all alone. Thank you for having this website.
September 30th, 2009 at 9:28 pm
Dear Nancy,I live in Virginia Beach, Virginia. WE are haveing a BIG fundraiser this Sunday. Please go to J.T.walk 2009. This is for Josh Thompson. This is our 2nd yr. Please look @the J.T.walk 2009 for ALS. Somehow or someway I wish you could talk to Josh’s Dad. Last year he raised over$1,000,000. And this year we have almost reached our goal of $1,400,000. Josh’s Dad owns alot of the hotels at the Va. Beach oceanfront. Our whole community has come together. Everyone loves Josh! He is such an awesome person. He is so kind to everyone! I just wish you would look at our site. WE our building a park on the beach so all hanicapped children can go the the beach and ocean. My name is Bonnie Kettner and Josh is very dear to my heart. I just know if you and Bruce Thompson could somehow talk (Josh’s dad)we could make this even bigger and find a cure!The J.t.walk had 5,000 walkers last year. MY email is bbbvabeach@aol.com my # 757 460-9051. Bruce Thompsons Wk.# 757 491-3000. Kim midjett is his asst. Nancy I am so sorry you lost your mom to this horriable disease. With everyones awareness we can find a cure. Thank you Bonnie Kettner
September 25th, 2009 at 12:37 am
Hi Nancy,
My mom was diagnosed with ALS on August 14, 2008. It has progressed very quickly. My mom is bed-ridden. She cannot communicate and is now sleeping most of the time. I have not heard her voice in over a year and I know she is suffering. I pray that she makes her journey soon to end her suffering.
September 18th, 2009 at 2:18 pm
Hi Nancy and family
My mother has been dianosed with ALS seven years ago. I am a single mother of two wonderful children. My mom is fighting this disease every step of the way. I am so glad that there are others around who are trying to find a cure for this awful disease. If there is anyone out there with any insight that could help I surely would appreciate any advise. Thanks
September 11th, 2009 at 9:09 pm
Dear Nancy . My dad passed away from als about 5 or 6 yrs ago . i wish that on nobody . i know as well as u do that it’s really hard to with . it’s nice to see that someone is trying to find a cure . i would really like to thank you for what you are doing .
September 11th, 2009 at 4:10 am
Dear Nancy,
I received a diagnosis of ALS just two months ago and I am more concerned about how this disease will affect my family than myself. Hopefully, they will focus their attention on working with organizations like yours to help me and others who follow down the same path. I treasure the loving relationships with my husband, two sons and one daughter. I understand what was so special between you and your mother for I’ve experienced it first hand with my own grown children and, now, my grandchildren. I wish you well in your endeavors to keep others – possibly, even me – from the tragedy of ALS. Thank you.
September 10th, 2009 at 6:04 am
You made some good points there. I did a search on the topic and found most people will agree with your blog.
September 9th, 2009 at 11:19 pm
Nancy, Thank you so much for all that you do in the battle to find a cure. I am a 58 year old woman with Bulbar onset and I want a cure. I do everything I can with any research project or drug trial because even if it does not help me, one day it may help others. Hang in there and again, Thanks
September 8th, 2009 at 11:51 pm
Hi, Nancy. I know exactly how you feel. I lost my sweet mother to ALS on February 29, 2008. She was 44 years old. She battled with the disease for almost 4 years. When she was first diagnosed, we knew nothing about it. Our first reaction was, “how do we cure it?” Then the Dr said that it was incurable. There is not another disease as terrible as ALS. My poor mother faught and faught, but the disease won. I think about her a million times a day and would give anything just to talk to her one more time. I miss her so much. Thank you for everything you have done to raise ALS awareness. We will all get to see our loved ones again one day and they will be healthier and more happier than ever! Our mothers are no longer hurting and they are no longer trapped in their diseased bodies. They are with God and you know they are in a special place in Heaven. God bless you and hang in there. I know I am trying to.
September 8th, 2009 at 12:46 pm
Hi Nancy
I to lost my best friend and beautiful daughter Kathy to this divasting disease at the young age of thirty nine.
one year after her dianogis,so i can feel your pain i,m so sorry .
I wish the National Baseball League would have some kind of a fund raiser,ln honor of the great Lou Gehrig,like they have for cancer. and donate i00.00 for every home run hit the day he made his (I’m the luckest man alive speech).on july forth.maybe we could get help from Kurt Schilling.