MDA Against ALS
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
 |
Correspond with Nancy on   |
August 20th, 2009 at 1:22 pm
I am 56 years old, and have been battling ALS for the last 12 years. It’s people like you in your position that helps get the word out about ALS. My condolences on your loss. Thanks for fighting the fight for the rest of us.
-Kathy
August 20th, 2009 at 1:04 pm
I ran across you speaking on Fox this morning, odd because I am not a regular Fox viewer, & was touched by your story of your mother. It reminds me of my own mother & our family’s stuggle with ALS. She was diagnosed, undiagnosed & rediagnosed during the almost 2 years when she had symptoms. Not that it matters since there is no cure or even effective treatment for ALS. The terrific doctors Mom saw were reluctant to give name to her disease because they hated to pronounce the death sentence. My parents celebrated their 50th wedding anniversary just about a week before Mom died in 1994. Her 11 children miss her always & see her influence reaching out to grandchildren & now great-grandchildren. We participate in the ALS Association’s Walk to Defeat ALS in both St Louis, MO & Springfield, IL because, as you know, there has to be a way to stop this disease that stole our mothers’ mobility, speech & ultimately lives. Thank you for making this a more public fight.
August 20th, 2009 at 12:52 pm
We’re with you, Nancy!
Hugs, Charley
August 20th, 2009 at 12:40 pm
Nancy,
I saw you on Fox & Friends this morning and I am sorry for your loss. What a wonderful tribute to your mother! I also lost my father to ALS in October 2006. It took a while to diagnose his symptoms too – weakening voice, hand cramps, limited range of motion. He died 10 months after the doctors diagnosed him. My father was not only a great dad but he was a great friend. I miss him terribly. Thank you for bringing attention to this disease.
August 20th, 2009 at 11:54 am
Nancy,
My thoughts and prayers are with you as you not only have lost your best friend and mother, but that through your tenacity to raise awareness for ALS, a cure will be found so other families will not suffer as you have.
Thank you for your courage and your voice on this deadly disease. May God bless you!
August 20th, 2009 at 11:48 am
Nancy –
Your courageous decision to publicly share your personal story continues to inspire countless families fighting ALS, and all of us working at MDA to eradicate this horrific disease. Thank you for all you have done to bring awareness and hope. You are so deserving of being honored in October at the Tradition of Hope Gala for MDA’s Augie’s Quest. Betty’s Battle will bring your families dedication to an even higher level – thank you for making a significant difference in the fight to end ALS.
August 20th, 2009 at 11:44 am
Nancy,
I want to tell you how proud I am to have you as my daughter. You have done a great job in assisting MDA in its efforts to eradicate ALS and all the other diseases under MDA.
MDA was there, at all times, to help our family through that tough time and I am really proud that you,as my daughter,are giving of your time to help MDA find a cure for this most insidious disease that took away from us one of the most wonderful mothers, wife and friend on this earth. I hope that they will find that cure soon so that those other families out there won’t have to suffer through what our family did.
I know that your Mom is looking down at you righ now and saying “thats my girl”.
Dad
August 20th, 2009 at 11:42 am
Dear Ms. O’Dell:
We’ve never met, and most likely never will, although we are both South Carolina natives who grew up along the Grand Strand area (North Myrtle Beach for me). You are an inspiration for all people, and I salute you for the love you have and will always have for your mother and family. May God bless you with your efforts with the MDA against ALS.
Sincerely,
Jerry Vereen
August 20th, 2009 at 10:43 am
Dear Sweet Nancy-
Thanks for the e-mail with this link. I wasn’t planning on crying this morning, but just can’t help it. Your mother will always be remembered as one of the most wonderful moms ever. I remember being so scared to spend the night away, but Betty always made me feel so loved, that I got over the fear very quickly. I can hear her voice calling your name right now. She always had a wonderful sweet snack for us when we got to your house. I called her about 3 years ago for her Chow Mein Noodle recipe. Oh so good! I am very thankful that I knew her. Even though there are tears in my eyes, there is a big smile on my face. She definately knew how to make people smile.
I think all that you are doing to raise awareness is awesome. I do hope that a cure is in our near future.
Much love- Lane
August 20th, 2009 at 10:43 am
I understand what you are going through. I had a family member die of this disease, at the time I was not aware of this physician in Rome who can treat this illness.
I do not know the exact treatment, he treated my husband of prostate cancer, who is now cancer free. He is a wonderful physician.
Please cantact Dr. Tullio Simoncini, his web site is t.simoncini or cancer fungus.com.
Good Luck.