MDA Against ALS
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
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Correspond with Nancy on   |
August 21st, 2009 at 12:01 am
You give us HOPE. God bless you.
August 20th, 2009 at 8:54 pm
My brother-in-law is suffering from ALS and is in the late stages of the disease. He has a 13 year old son who is stuggling to understand this disease that is robbing his father of the joys of life. My sister is struggling to care for him, but manages with the support of many people.Thank you for sharing your story. It is such an encouragement.
Mary Bogar
August 20th, 2009 at 7:30 pm
Nancy,
I saw you on Fox News this morning and know how difficult it is. I have military service-connected ALS. I know the feelings and emotions from a different perspective; through my 7 yr old son’s eyes and those of my wife of 17 yrs.
Veterans with this disease have claims being buried and ignored. We need help with awareness. I have already requested Congressional Inquiry, sent letters to the President, and VA Secretary; only to be ignored.
I only have so much Fight left.
Fox4ALS.com is my fight.
A fellow Veteran’s wife was told, “Why bother with the claim, he won’t live long enough.”
God Bless you for heightening awareness.
August 20th, 2009 at 6:14 pm
Dear Nancy , so happy to hear about your cause in treatment for ALS. Member from my family had this disease and was not diganised until the very end. At the time I had not heard of a physician in Rome who can threat this illness, how I do not know. However I can tell you he treated my husband for prostate cancer in 2008. My husband is now cancer free. He treats cancer as a fungus. You can make contact with him by going to his web site—t.simoncini or cancerfungus.com. If you are interested in talking with him, please contact me through my e-mail. Good luck in your cause to find the cure for this awful illiness.
August 20th, 2009 at 5:16 pm
Dear Nancy,
God Bless you for bringing attention to this horrible disease. My mother died of ALS in 1998 and we miss her terribly. Coincidentally, her name was Betty also. Your willingness to heighten awareness of ALS, continuing research and God’s guidance will hopefully one day bring about a cure. Thanks for your help.
Gratefully,
Karen Sawyer
August 20th, 2009 at 4:14 pm
I am sorry for the loss of your Mother, Nancy. My husband was diagnosed in Feb., 09. He taught school until April, and now he can’t walk or stand, talk so anyone can understand, and has trouble swallowing. He gets his feeding tube placed tomorrow. I am absulutely convinced that the statin drugs he took has something to do with all this. I have talked to others who believe the same thing of their family members who perished with ALS. I hope a lot more research will be done to prove this, one way or the other. The symtoms he experience on statins were the same as with ALS. When he quite taking the statins, he improved completely, and was even able to paint our church, climbing ladders and getting up from the baseboards. That was last summer, about a year after stopping the statins.
I can’t talk with my husband, because I can’t understand him. We are hoping that before too long we will be able to get a communication device. He is quite frustrated about that. Otherwise, his outlook is very good. He is a great guy, and as it was with your mom, he is my best friend.
Keep up the good work you are doing! I hope a cure is soon.
God bless you. Bette Schumann
August 20th, 2009 at 3:37 pm
Beautiful story and Family. We loved Betty!
August 20th, 2009 at 3:09 pm
I, too, saw you on Fox & Friends this morning. I am so sorry for your loss. My father died of cancer in 2003, and I know how painful it is to lose a loved one. You and your family are in my prayers tonight, Nancy.
God Bless You
Julia Cooper
August 20th, 2009 at 2:53 pm
My father was a famous daredevil clown who traveled throughout the United States and Canada from 1951 until 1981. He was diagnosed in 1982 with ALS. He lived until March 29, 2008. He suffered many hardships in his life, one of which was his wife of 28 years leaving him for another man. Through all of this he remained optimistic that he could beat this disease. He had such a great sense of humor and was able to laugh and joke about everything. To the very end, he lived alone and cared mostly for himself. He was still able to talk and eat and manuever in a wheel chair. He was such an inspiration to everyone.
At the end he believed he had beat ALS and that could be true. I miss him so much. My life will never be the same without him. MDA did alot for him and I am truly grateful. Mostly I am grateful that of all the Dad’s in the world, I was blessed to have him as mine.
I hope there is a cure to be found for this and other neurological disorders.
August 20th, 2009 at 1:41 pm
Dear Nancy,
I saw you on Fox & Friends this morning and think what you are doing is wonderful. The advances and understanding of this disease are probably for more advanced then when my aunt was diagnosed and lost her battle with ALS in 1977. Within six months of her being diagnosed she was gone. I was very young at the time (9), but remember very good times with her. She was the only person that every babysat me and my brother. She was such a robust and outgoing person and to see her deteriorate in a matter of 6 months is something I will never forget. To go from someone who took care of us to having to be taken care of will be with me for the rest of my life.
The disease if horrible and I hope that through you and your work a cure will be found and others won’t have to go through what we have had to go through.
Good luck and God Bless!
Donna Maddie