MDA Against ALS
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
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Correspond with Nancy on   |
August 21st, 2009 at 2:50 pm
Nancy, thank you for doing this. As an MDA Volunteer and Supervisor and a HUGE WWE fan, I am especially psyched that WWE has come on board to help you launch this very important undertaking. The best of luck to you in this endeavor!
August 21st, 2009 at 2:43 pm
Nancy! I’m so thrilled you are joining the fight against this wicked disease! Four of my family members have died from ALS, including my 44 year old mother! Thank you for all that you do!
August 21st, 2009 at 1:17 pm
Nancy thank you in so many ways to relize iam not only one.My husband has ALS we been doing alot of test now they are at the point of stopping. Hope soon can see a cure but i know it wont happen before his time.
August 21st, 2009 at 1:02 pm
Nancy,
I am so sorry for your loss & completely understand your pain. I have lost many family members to this horrible disease starting with my Grandfather in 1973 and the latest was my Aunt in September of 2008. The familial form of ALS is in my family and we have lost many to it. We live every day of our lives with the realization that we too could get this dreaded diagnoses at any time.
Thank you for what you are doing to bring ALS more into the public eye. While I know people have been researching this disease for many many years, it seems that not much progress has been made. So many people don’t even know what it is, or have never heard of it. Maybe with what you and your family are doing that can be changed. Wouldn’t that be a wonderful legacy for your sweet Mom to leave behind.
Thank you and God bless you,
Tammy Piefer
August 21st, 2009 at 12:11 pm
I too saw your segment on Fox &Friends. My mother was diagnosed April/May 2006 and died this past May, at the age of 67. I am encouraged & hopeful that you can garner public attention for this hellish disease. My thoughts & prayers are with you & all the patients/families dealing with this disease.
Heide Welton
August 21st, 2009 at 11:33 am
Dear Nancy,
You were brought to my attention this morning when my aunt called me. She let me know how you lost your mother. My heart went out to you right then because I lost my mother earlier this year too because of ALS. God knows I truly understand what you and other guests faced or are facing with your loved ones. There’s not a day that I don’t remember how STRONG, POWERFUL and INDEPENDENT she was when God allowed me to be bless with having her on earth with me. See, the only thing that allows me to go on is knowing that she’s gone to be with Jesus Christ and seeing my grandparents again!!!! I will lift you & your family up in my prayers. When you’re having super hard times, please remember the fond memories that you have of your mom and know that God is there to help you get this situation when nobody appears to truly truly understand the devastating pain you’re facing. Take care of yourself and may God be with you and your family.
Mr. Carlos J. Bynoe
August 21st, 2009 at 9:52 am
Hello Nancy
My symtoms started over 10 years ago, I have two brothers
that have the same thing, I have lost more then 5 in our family, including my mother and sister. Me and my brother
have done a few motorcycle runs to Canada to raise money and awareness, keep up the work, let me know if there is something we can add to your work. Thanks Dave
August 21st, 2009 at 9:27 am
Keep up the GREAT work Nancy and know that your mommy will live on through you and all you do. God Bless all our friends stricken & battling with ALS
August 21st, 2009 at 9:22 am
Hi Nancy,
I saw your piece on Fox yesterday and wanted to thank you for raising awareness. We are going through this now and it is so hard and so sad. People should know more about this disease that really can affect any one at any time. My wife was stricken when she was 38 and just turned 41 April. She worked out every morning, was in amazing shape and was the picture of health. We have 3 young daughters and they are doing amazingly well. I started blogging about our story back in January after a trip to the Mayo clinic in Rochester just confirmed what the other Neuro’s had said. Here’s a link to my blog. We have tried every “treatment” imagineable and have our theory on how this all started. It’s all there in the chronicle and many people have told me that the blog has helped them a lot both from the treatment side, but also from the personal side. Again, thank you for coming out and supporting the cause publicly. Here’s the link: http://alschronicle.blogspot.com.
Best,
Bill
August 21st, 2009 at 7:22 am
Dear Nancy,
First, I am so sorry about your mother. I saw you on Fox yesterday, and was very touched by what you are doing for other people. I have some information that may be helpful. I am sending a link to a web site about low dose naltrexone. There is a lot of information about this drug which was originally formulated to help drug addicts. But its off-label use has been for all types of autoimmune diseases, and there is an article about its possibilites for ALS:
http://www.lowdosenaltrexone.org/ldn_and_ai.htm
I’m not thinking that this is a magic bullet, but perhaps a way for people to stabelize. I hope this information might be helpful.
All the best,
Denise Rodgers