MDA Against ALS
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
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Correspond with Nancy on   |
August 23rd, 2009 at 10:00 pm
This is a wonderful thing, I have been watching everything on ALS for years. I lost my grandmother in 1974 from ALS, before any real treatments were available. She was a true pioneer for this disease, when she died she donated her body for the study of this disease and we found out last year that her remains were buried in the Gulf of Mexico. Continue fighting for the cure of ALS. We still miss you Girgir..
August 23rd, 2009 at 11:32 am
Dear Nancy,
Thank you for all your efforts to raise awareness for ALS and the fight to find a cure. You are an inspiration to all of us who have been affected by this devastating disease. I lost my father to ALS 4-15-09. The past 18 months have been the worst thing I have ever been through in my life. My battle is not over until they find a cure and I am determined to see it in my lifetime. I have a feeling our parents are proud that we are uniting in this effort and that we will make a difference. I couldn’t save my father but I will Never Give Up the fight to save someone else.
August 23rd, 2009 at 10:48 am
Nancy,
My mom was diagnosed a few years ago with a terrible movement disorder Multiple System Atrophy (MSA). This terrible disease also took my sweet southern mothers voice away. I also spoke to my mother on the phone every day and I miss it so very much. I have a 10 month od little girl who will never get to know how wonderful her grandmother is. She cannot write because this disease not only took away her ability to walk and talk but also the ability to control her arms and fingers. I feel so blessed when she has a good day and I can understand the things she is trying to say. The sadness I see on her face breaks my heart. I wish there was more information about her disease for her and us ( her family). Please bring awareness of this disease as another movement disease. It needs a voice out there too. Many doctors aren’t even aware of it. It is so frustrating.
Thank you for sharing your story of your mother. It was so similar to my mom’s illness story…undiagnosed for so long.
- Heather
August 23rd, 2009 at 7:30 am
Nancy, Sorry about your mom. Thank you for doing this. My grandfather had it and it is a nasty disease. My heart goes out to everyone that has been affected by this disease.
August 23rd, 2009 at 12:39 am
I have not been affected directly by family but saw a friend of my grandma suffer from it . I remember how he impacted my life. I’m so sorry for your loss and pray for all the families that are affected by this terrible disease. May we find a cure soon.
August 22nd, 2009 at 9:29 am
thank you so much for doing this,so sorry for the loss of your mom. i am 53 was dx oct.08 with als. it was a shock no were in family is this shown up. i have husband, 3 sons 2 daughters-in-love, 4 grandkids. what hurt us most was i couldn’t draw ss disabily or get medicare. i had worked for 20 years but had be unemployed for the last 10yrs. stayed home and took care of grandkids. ss said they only go back the last 5 yrs., and i don’t have the credits. that has really hurt if the law was changed. if i live to retirement then i can draw thats what they told me at the ss office. god-bless you in all your doing for the als cause we need you. best of luck to you and your family..
August 21st, 2009 at 10:53 pm
Nancy,
My dad was diagnosed with ALS in September of 2008 and passed away 9 weeks ago. I know how you feel. He too was my best friend. Thank you for being a crusader of this horrible disease. Hopefully, the more we get the word out, the more research will be done and a cure will be found. I don’t want any other families to go through what we went through. My dad was truly the best dad I could have ever hoped for. He was kind, gentle, and encouraging. Even on his worst days, he kept his head held high and never complained. I miss him so much.
Thanks for your help!
Diana
August 21st, 2009 at 9:34 pm
Hello,
I just wanted to let you know that you are doing an amazing service by speaking out about ALS. We just lost my father to the disease last Sunday, after he battled valiantly for 2.5 years. He was also 74. Hopefully there will be cure someday soon, so other families do not need to endure the same thing.
August 21st, 2009 at 7:59 pm
Nancy, thank you for honoring your mom and for bringing awareness to ALS. My husband was diagnosed in early 2008 and he is courageously fighting the horrific disease. We have formed “Dwight’s Fight against ALS” and will do our first “Courage Walk” next month. We are trying to start a local loaner closet and provide tangible encouragement to those courageous men and women in our community who are battling ALS. If we all do our part there may be enough awareness and money raised to make an impact on finding a cure! By the way, thank you also for taking time to share your story with Creative Memories. May you and your family be blessed!
http://www.caringbridge.org/visit/djohnson and http://www.dwightsfight.org
August 21st, 2009 at 6:23 pm
Dear Nancy,
Thank you for turning your pain into this beautiful tribute to your Mom. Only good can come from this effort.
Best wishes to you and your family, Chris