MDA Against ALS
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
MDA is the world leader among voluntary agencies fighting ALS, offering the most comprehensive range of services. People with ALS receive care at 200 MDA-supported ALS clinical centers across the country. MDA also leads the search for a treatment or cure for ALS through its aggressive, worldwide research program.
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Correspond with Nancy on   |
September 7th, 2009 at 3:49 pm
Dear Nancy,
You are so beautiful inside and out. I’m sure you got that from your Mom. Thank you for all the work you do for MDA.
With love, respect and gratitude,
Derrick
September 7th, 2009 at 1:42 pm
Hi Nancy, Keep up the good work, the fight goes on and with you and Jerry, they will find a cure.
September 1st, 2009 at 5:46 am
Hey Nancy, just wanted to tell you that you are an amazing person and I am so glad you’re going to do the telethon every year. I too have MD, me and my mom, and we are not giving up, you shouldn’t either and i see you’re not. I’m so so so sorry about what happend to your mom, but now she is and Angel looking down on you.
Many blessings to you and your whole family.
August 29th, 2009 at 9:06 am
As my mothers ALS progresses, I find it somewhat difficult to see the light at the end of the tunnel. But I am greatful for the help and support of groups such as this one, and their pursuit to help find a cure. This site is such a fitting tribute.
August 28th, 2009 at 9:06 pm
My heart goes for you. I recently saw you on monday night raw aired 8-24-09. My grandfather had passed away back in 1988 due to als. He would be 76 on Sept 1 if he was alive. When he passed I was only 4. I did some reaserch years ago and found out I had a 15% chance of getting asl. As soon as I get a job I do intend in helping find a cure for asl.
August 27th, 2009 at 5:36 pm
I just saw your appearance on telethon – was very touching and heartfelt. Our mom passed away 15 years ago from ALS – a beloved mom of 11, grandma of 16 and wife of 50 years – she was the best thing in our lives. As you said, the hardest thing was not being able to talk with her – had we only known, we could have taped her beautiful voice and the wonderful stories before we lost her.
August 26th, 2009 at 4:39 pm
Hi Nancy! This is such a wonderful tribute to your mom & a cause so close to my heart. I lost my loving , beautiful wife (age 49) to this dreadful disease April 2000. To this day, I’m still active with ALSA, & will continue to be until a cure is found. My family (sons) are big WWE fans & are glad they’re helping to bring awareness. GOD bless
August 26th, 2009 at 3:03 pm
I heard you talk about this website today on Access Granted and wanted to check it out. My family and I are in tireless support of research and awareness for ALS as we have lost so many family members to this disease. Most recently and dear to my heart was my grandmother. On behalf of her and the rest of my family I’d like to thank you for all you’ve done for the cause.
Kelli
August 26th, 2009 at 2:29 pm
Thank you so much for all that hard work that you are doing to bring awareness to this devestating disease called ALS.My husband Ernie passed away from this disease on Sept 27,2008 and to watch this disease take away this strong,active,hard working,loving man was the hardest thing that I have ever had to witness.I felt hopeless knowing that I could not take away the fear that he felt when he was diagnoised and no cure or medication to save him.
August 26th, 2009 at 1:46 pm
Hi Nancy,
What a wonderful tribute to your mom, and one that will help thousands of others at the same time.
I lost my dad to ALS 20 years ago. He was only 71. Like your mom, one of the most devistating aspects of the ALS was the loss of the ability to talk while the mind was still clear and sharp. As City Clerk in our city, like your mom, he had used his voice and ability to write as his primary ‘professional tools’.
I am pleased to introduce you to work that I am doing, partly in honour of my Dad. This Fall the Fashion Moves Garment Design Competition will be launched. With this we will introduce the concept of functional, respectful adaptive clothing to the Fashion Designers of tomorrow and encourage them to start to create for this community. Through your caregiving of your mom, you will be aware of the daily difficulty the simple act of getting dressed can become. I would love to chat with you about this.
Thank you for starting this organization.
Ruth J. Clark
Fashion Moves
http://www.fashionmoves.org