Comments on: Guestbook http://www.bettysbattle.org A daughter's hope Wed, 30 Dec 2009 22:50:12 -0400 http://wordpress.org/?v=2.8.5 hourly 1 By: David Sanford http://www.bettysbattle.org/guestbook/comment-page-14/#comment-435 David Sanford Wed, 30 Dec 2009 22:50:12 +0000 http://ec2-75-101-191-255.compute-1.amazonaws.com/wordpress/bettysbattle/?page_id=33#comment-435 Merry Christmas Nancy I was very sad to hear of the passing of your Mother Betty, I lost my little Brother Robert to ALS a few years ago so I am still freshly dealing with his passing. Especially at Christmas as Robert loved Christmas and his wife and two great boys, We can never replace what the Creator took from us and maybee in time we will understand just why. The one thing that Robert was sad and mad at was the lack of real help for this disease here in Canada, I will never forget my little Brothers great suffering from the deadly ALS.This disease strips away all dignity and eventually kills every muscle within the human body, I truly wonder Nancy who this disease affects more those who have it or the loved ones that are forced to stand by and watch them suffer in silence as we scream inside for answers. My Brother Robert and I are poster boys for ALS Ontario and I am proud to be Roberts big Brother, ALLWAYS FOREVER. Nancy please keep up the great awareness and funding campaighn, Betty and Robert are counting on us to make the difference. Merry Christmas and love I send to you, David Grey Eagle Sanford. 416-615-2754 Toronto Canada Merry Christmas Nancy
I was very sad to hear of the passing of your Mother Betty, I lost my little Brother Robert to ALS a few years ago so I am still freshly dealing with his passing. Especially at Christmas as Robert loved Christmas and his wife and two great boys, We can never replace what the Creator took from us and maybee in time we will understand just why. The one thing that Robert was sad and mad at was the lack of real help for this disease here in Canada, I will never forget my little Brothers great suffering from the deadly ALS.This disease strips away all dignity and eventually kills every muscle within the human body, I truly wonder Nancy who this disease affects more those who have it or the loved ones that are forced to stand by and watch them suffer in silence as we scream inside for answers. My Brother Robert and I are poster boys for ALS Ontario and I am proud to be Roberts big Brother, ALLWAYS FOREVER. Nancy please keep up the great awareness and funding campaighn, Betty and Robert are counting on us to make the difference.
Merry Christmas and love I send to you,
David Grey Eagle Sanford.
416-615-2754
Toronto Canada

]]> By: Robin Dell http://www.bettysbattle.org/guestbook/comment-page-14/#comment-434 Robin Dell Wed, 23 Dec 2009 20:29:03 +0000 http://ec2-75-101-191-255.compute-1.amazonaws.com/wordpress/bettysbattle/?page_id=33#comment-434 My daddy was diagnosed December 9, 2008 with ALS. This is the most horrible thing to watch happen. He was a healthy 57 year old and then on July 9 2009 he lost his battle. We are still in shock he and my mom were married 30 years and were the best of friends. The worst was the disease took his voice and I miss the sound of it. I treasure the emails he would type out for me. My heart hurts for you. My daddy was diagnosed December 9, 2008 with ALS. This is the most horrible thing to watch happen. He was a healthy 57 year old and then on July 9 2009 he lost his battle. We are still in shock he and my mom were married 30 years and were the best of friends. The worst was the disease took his voice and I miss the sound of it. I treasure the emails he would type out for me. My heart hurts for you.

]]> By: Jamie D. http://www.bettysbattle.org/guestbook/comment-page-14/#comment-433 Jamie D. Mon, 21 Dec 2009 19:12:09 +0000 http://ec2-75-101-191-255.compute-1.amazonaws.com/wordpress/bettysbattle/?page_id=33#comment-433 I remember every moment of the day I found out my Grandma, my best friend, was dignosed with ALS. I remember the grief I felt in hearing my Grandma tell me that the prognosis was only months (I was 16 at the time.) In that moment I said, "NO, Grandma we are going to fight this." FIGHT she did. She didn't succomb to the disease in months instead she fought a brave battle that lasted more than three years. I remember her lying in the hospital bed barely able to open her beautiful eyes until she looked at me and she smiled...My Grandma knew that as a family we were strong enough to let her go....I told her to fly. I remember every moment of the day I found out my Grandma, my best friend, was dignosed with ALS. I remember the grief I felt in hearing my Grandma tell me that the prognosis was only months (I was 16 at the time.) In that moment I said, “NO, Grandma we are going to fight this.” FIGHT she did. She didn’t succomb to the disease in months instead she fought a brave battle that lasted more than three years. I remember her lying in the hospital bed barely able to open her beautiful eyes until she looked at me and she smiled…My Grandma knew that as a family we were strong enough to let her go….I told her to fly.

]]> By: Laura O'Donohue http://www.bettysbattle.org/guestbook/comment-page-14/#comment-432 Laura O'Donohue Sun, 20 Dec 2009 10:24:22 +0000 http://ec2-75-101-191-255.compute-1.amazonaws.com/wordpress/bettysbattle/?page_id=33#comment-432 Hi Nancy, I just watched your farewell show tonight, a day later at 2am while nursing my 7 week old. My mom is 56 and has ALS. I feel like my story is similar to yours. Newly married and a new mom and taking care of my newborn and my mom all at the same time. It's a lot to handle. It's such a terrible disease; I can't think of anything worse, except thank God we get to spend time with them and tell them how much we love and appreciate them. Life is too busy and hard to work on the ALS fight now, but I promise I will in my mom's memory in the future. Laura Hi Nancy,

I just watched your farewell show tonight, a day later at 2am while nursing my 7 week old. My mom is 56 and has ALS. I feel like my story is similar to yours. Newly married and a new mom and taking care of my newborn and my mom all at the same time. It’s a lot to handle. It’s such a terrible disease; I can’t think of anything worse, except thank God we get to spend time with them and tell them how much we love and appreciate them. Life is too busy and hard to work on the ALS fight now, but I promise I will in my mom’s memory in the future.

Laura

]]> By: Mara Nicoloff http://www.bettysbattle.org/guestbook/comment-page-13/#comment-431 Mara Nicoloff Sat, 19 Dec 2009 01:30:56 +0000 http://ec2-75-101-191-255.compute-1.amazonaws.com/wordpress/bettysbattle/?page_id=33#comment-431 Thank you for this beautiful cause that you established for your mother. Just from what I read about your mother, it reminded me of my sweet grandmother who also passed away from this tragic disease. It is so devastating to see a beautiful, vibrant, outgoing, strong, amazing woman like my grandmother (and your mom) die from a disease that silenced her voice but never her spirit. I chose my career as a Speech Language Pathologist in honor of my grandmother "Mamaw," in order to try and help the individuals and their families deal with the tragedy this disease causes. I'm so very sorry about your loss and pray that a cure will be discovered quickly. It's wonderful that you have brought "light" to this cause! Your mother is your angel and is smiling down on you! I'm sure she and my grandmother cannot stop TALKING about how proud they are of their families and how they are so happy. Thank you again Nancy. Thank you for this beautiful cause that you established for your mother. Just from what I read about your mother, it reminded me of my sweet grandmother who also passed away from this tragic disease. It is so devastating to see a beautiful, vibrant, outgoing, strong, amazing woman like my grandmother (and your mom) die from a disease that silenced her voice but never her spirit. I chose my career as a Speech Language Pathologist in honor of my grandmother “Mamaw,” in order to try and help the individuals and their families deal with the tragedy this disease causes. I’m so very sorry about your loss and pray that a cure will be discovered quickly. It’s wonderful that you have brought “light” to this cause! Your mother is your angel and is smiling down on you! I’m sure she and my grandmother cannot stop TALKING about how proud they are of their families and how they are so happy. Thank you again Nancy.

]]> By: William http://www.bettysbattle.org/guestbook/comment-page-13/#comment-430 William Tue, 01 Dec 2009 00:00:26 +0000 http://ec2-75-101-191-255.compute-1.amazonaws.com/wordpress/bettysbattle/?page_id=33#comment-430 On August 29th of this year I found this fitting tribute to Betty and her battle. As my mother was also fighting the same battle. But this morning at 4:30am she lost the good fight adding to the total of people who have been taken by A.L.S. May there be a cure found so others won't have to feel the pain and frustration that we have been through. On August 29th of this year I found this fitting tribute to Betty and her battle. As my mother was also fighting the same battle. But this morning at 4:30am she lost the good fight adding to the total of people who have been taken by A.L.S. May there be a cure found so others won’t have to feel the pain and frustration that we have been through.

]]> By: ioannis kolovis http://www.bettysbattle.org/guestbook/comment-page-13/#comment-429 ioannis kolovis Sun, 22 Nov 2009 14:46:09 +0000 http://ec2-75-101-191-255.compute-1.amazonaws.com/wordpress/bettysbattle/?page_id=33#comment-429 i admire your efford.keep going like this.i can not even imagine what is like to have als or have a family member with it.i am a fan of wwe and i hope they continioue their support. i admire your efford.keep going like this.i can not even imagine what is like to have als or have a family member with it.i am a fan of wwe and i hope they continioue their support.

]]> By: Lynn Foglio http://www.bettysbattle.org/guestbook/comment-page-13/#comment-427 Lynn Foglio Sat, 31 Oct 2009 20:28:49 +0000 http://ec2-75-101-191-255.compute-1.amazonaws.com/wordpress/bettysbattle/?page_id=33#comment-427 I am a 39 year old woman recently diagnosed with ALS this past spring. We need people like Nancy to raise awareness and help find a cure. My life depends upon it.....literally! I am a 39 year old woman recently diagnosed with ALS this past spring. We need people like Nancy to raise awareness and help find a cure. My life depends upon it…..literally!

]]> By: Judy Stewart http://www.bettysbattle.org/guestbook/comment-page-13/#comment-425 Judy Stewart Fri, 23 Oct 2009 05:06:51 +0000 http://ec2-75-101-191-255.compute-1.amazonaws.com/wordpress/bettysbattle/?page_id=33#comment-425 Hello Nancy, Thank you for bring ALS information to the world. My sister passed away 2008 from ALS & she was only 56 yrs. old. We know she is an angel now but we miss her so. We participate in ALS walks in Ky. & Il. hoping to bring more attention to ALS. Hello Nancy,
Thank you for bring ALS information to the world. My sister passed away 2008 from ALS & she was only 56 yrs. old. We know she is an angel now but we miss her so. We participate in ALS walks in Ky. & Il. hoping to bring more attention to ALS.

]]> By: Bob http://www.bettysbattle.org/guestbook/comment-page-13/#comment-424 Bob Tue, 20 Oct 2009 05:37:11 +0000 http://ec2-75-101-191-255.compute-1.amazonaws.com/wordpress/bettysbattle/?page_id=33#comment-424 Hi Nancy I was just watching Access tonight and great to see you were presented with some awards for all of your hard work you have done with ALS. We lost our Mom in April 2008 from ALS and we miss you so much, and reading these pages, brings tears to my eyes. Take care of yourself Nancy Bob Hi Nancy
I was just watching Access tonight and great to see you were
presented with some awards for all of your hard work you have done with ALS.
We lost our Mom in April 2008 from ALS and we miss you so much, and reading these pages, brings tears to my eyes.
Take care of yourself Nancy

Bob

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